Publications

Search our bibliography using the filters on the right-hand side.

Displaying 301 through 350 of 1477 publications.

Lennon R, Ruffin M, Miller E, Van Scoy L, Zgierska A, Rabago D. Patient perceptions of the SARS-CoV-2 pandemic: a cross-sectional convergent mixed-methods questionnaire. Presented at the Virtual 2020 North American Primary Care Research Group (NAPCRG) Annual Meeting; November 20, 2020.

Rudell K, Doward L, Bennett B, Rodriguez AM, Jane Rylands AJ. Expanding COA in 2020 – guidance in RWE and improving communication between different stakeholders. Presented at the Virtual ISPOR Europe 2020 Conference; November 11, 2020.

Sun SX, Olayinka-Amao O, DiBenedetti D. Assessing patient experiences with prophylactic treatments for hemophilia A: concept elicitation for gene therapy. Poster presented at the 62nd Annual Virtual Meeting of the American Society of Hematology (ASH); December 5, 2020. [abstract] Blood. 2020 Nov 5; 136(Suppl 1):33-4.

Su J, Kosa K, DiBenedetti D. Patient-reported disease burden: in-depth interviews of patients with CAD. Poster presented at the 2020 Virtual 62nd ASH Annual Meeting and Exposition; December 6, 2020. [abstract] Blood. 2020 Nov 5; 136(Suppl 1):29-30.

Starr HL, Abell J, Larish A, Lewis S, DeMuro C, Gogate J, Jamieson C, Daly E, Zaki N, Kramer M. Self-reported review of the value of esketamine in patients with treatment-resistant depression: understanding the patient experience in the STRIVE Study. Psychiatry Research. 2020 Nov;293:113376. doi: 10.1016/j.psychres.2020.113376

Cohen AD, Hari P, Htut M, Berdeja JG, Madduri D, Usmani SZ, Allred AJ, Olyslager Y, Banerjee A, Goldberg JD, Schecter JM, Jackson CC, Gries KS, Fastenau J, Deraedt W, Carrasco MJ, Akram M, Hossain F, Crawford R, Morrison R, Doward L, Jakubowiak A, Jagannath S. Patient expectations and perceptions of treatment in cartitude-1: phase 1b/2 study of ciltacabtagene autoleucel in relapsed/refractory multiple myeloma. Poster presented at the 62nd Annual Virtual Meeting of the American Society of Hematology (ASH); December 2020. [abstract] Blood. 2020 Nov; 136(Suppl 1):13-6. doi: 10.1182/blood-2020-136383

Bhang I, Mogle J, Hill N, Whitaker EB, Bhargava S. Examining the temporal associations between self-reported memory problems and depressive symptoms in older adults. Aging Ment Health. 2020 Nov;24(11):1864-71. doi: 10.1080/13607863.2019.1647135

Sauchelli S. Digitalising diabetes support groups in response to the coronavirus COVID ‐19 outbreak: a collaborative initiative. Pract Diabetes. 2020 Nov;37(6):208. doi: 10.1002/pdi.2306

Sauchelli S. Digitalising diabetes support groups in response to the coronavirus COVID-19 outbreak: a collaborative initiative. Pract Diabetes. 2020 Nov;37(6):208-210a. doi: 10.1002/pdi.2306

Neshteruk CD, Norman K, Armstrong SC, Skinner A. Association between obesity, cardiovascular disease risk factors, and parenthood: NHANES 2011-2016. Poster presented at the 38th Annual Meeting of the Obesity Society; November 6, 2020. Virtual. [abstract] Obesity (Silver Spring). 2020 Nov; 28:51. doi: 10.1002/oby.23063

Saretsky T, DeMuro C, Finelli L, Phillips M, Lewis S, Martin E, Osborne R, Norquist J. Modification of an existing patient-reported outcome measure (PROM) for a new context of use in a seasonal infectious disease. Poster presented at the 27th Annual Virtual Conference of the International Society for Quality of Life Research (ISQOL); October 19, 2020. [abstract] Qual Life Res. 2020 Oct 17; 29(Suppl 1):S139. doi: 10.1007/s11136-020-02626-y

Henderson GE, Ewing M, Kuczynski KJ, Cadigan RJ, Waltz M, Butterfield RM, Rini C, Weck K, Berg JS, Edwards TP. Development and validation of a measure of comprehension of genomic screening-negative results (CoG-NR). Eur J Hum Gene. 2020 Oct;28(10):1394-402. doi: 10.1038/s41431-020-0657-1

Whalley D, Twiss J, Doward L, Balp MM, Brass C, Tietz A, Loeffler J, Lopez P, Lawitz EJ, Sanyal AJ. A novel patient-reported outcome measure indicates low burden of treatment among patients with non-alcoholic steatohepatitis: interim results from a phase 2 trial of tropifexor. Poster presented at the AASLD 2020 annual meeting; November 13, 2020. Boston, MA. [abstract] Hepatology. 2020 Oct 1; 72(S1):1005A. doi: 10.1002/hep.31579

Doward L, Twiss J, Whalley D, Balp MM, Brass C, Loeffler J, Cryer DR, Cai J, Lopez P, Lawitz EJ, Anstee QM, Sanyal AJ. Development of NASH-CHECK: a new patient-reported outcome measure for NASH. Poster presented at the AASLD 2020 annual meeting; November 13, 2020. Boston, MA. [abstract] Hepatology. 2020 Oct 1; 72(S1):1014A-5A. doi: 10.1002/hep.31579

English M, Stoykova B, Slota C, Doward L, Siddiqui E, Crawford R, DiBenedetti D. Qualitative study of the burden of vasomotor symptoms associated with menopause and content validity of two PROMIS sleep measures in menopausal women. Poster presented at the NAMS 2020 Virtual Meeting; September 30, 2020.

Sauchelli S, Bradley J, Cox J, England C, Perry R. Weight maintenance interventions for people with type 2 diabetes mellitus: a systematic review protocol. Syst Rev. 2020 Sep 12;9(1):210. doi: 10.1186/s13643-020-01467-7

Lennon RP, Sakya SM, Miller EL, Snyder B, Yaman T, Zgierska AE, Ruffin 4th MT, Van Scoy LJ. Public intent to comply with COVID-19 public health recommendations. Health Lit Res Pract. 2020 Aug 6;4(3):e161-5. doi: 10.3928/24748307-20200708-01

Block, Jr. R, Berg A, Lennon RP, Miller EL, Nunez-Smith M. African American adherence to COVID-19 public health recommendations. Health Lit Res Pract. 2020 Aug 6;4(3):e166-70. doi: 10.3928/24748307-20200707-01

Penner I-K, McDougall F, Brown TM, Slota C, Doward L, Julian L, Belachew S, Miller D. Exploring the impact of fatigue in progressive multiple sclerosis: a mixed-methods analysis. Mult Scler Relat Disord. 2020 Aug;43:102207. doi: 10.1016/j.msard.2020.102207

Martin SA, Brown TM, Fehnel S, Deal LS, Katz EG, Chiou CF. The atopic dermatitis itch scale: development of a new measure to assess pruritus in patients with atopic dermatitis. J Dermatolog Trea. 2020 Aug;31(5):484-30708. doi: 10.1080/09546634.2020.1713971

DiBenedetti D, Slota C, Wronski SL, Vradenburg G, Comer M, Callahan LF, Winfield J, Rubino I, Krasa HB, Hartry A, Wieberg D, Kremer IN, Lappin D, Martin AD, Frangiosa T, Biggar V, Hauber B. Assessing what matters most to patients with or at risk for Alzheimer's and care partners: a qualitative study evaluating symptoms, impacts, and outcomes. Alzheimers Res Ther. 2020 Jul 30;12(90). doi: 10.1186/s13195-020-00659-6

Miller E, Gabbay RA, Hollenbeak CS. Impact of hypoglycemic events in an inpatient setting for type 2 diabetes patients. Poster presented at the Virtual 2020 Academy Health Annual Research Meeting; July 28, 2020.

Nag A, Martin SA, Mladsi D, Olayinka-Amao O, Purser M, Vekaria RM. The humanistic and economic burden of chronic idiopathic constipation in the USA: a systematic literature review. Clin Exp Gastroenterol. 2020 Jul 16;(13):255-65. doi: 10.2147/CEG.S239205

Davidson D, Stevenson M, Llonch MV, Hsieh A, Brown TM, Slota C, Fehnel S. Development of a novel patient-reported outcome measure symptoms and impacts of familial chylomicronemia syndrome. J Clin Lipidol. 2020 Jul;14(4):P571.

Nussbaumer-Streit B, Greenblatt A, Kaminski-Hartenthaler A, Van Noord MG, Forneris CA, Morgan LC, Gaynes BN, Wipplinger J, Lux LJ, Winkler D, Gartlehner G. Melatonin and agomelatine for preventing seasonal affective disorder: a Cochrane Review. BJPsych Adv. 2020 Jul;26(4):192. doi: 10.1192/bja.2020.26

DiBenedetti D, Gnanasakthy A. The strategic, labeling, and methodologic considerations for patient experience data. Presented at the 2020 ISPOR Boston Seminar; June 29, 2020.

Stephens MB, Bowen JL, McGinley (Miller) EL, Rainey P. Organizing chaos: iterative professional identity formation through the lens of mask making. PRiMER. 2020 Jun 18;4(10). doi: 10.22454/PRiMER.2020.705788

Aletaha D, Husni ME, Merola JF, Ranza R, Bertheussen H, Lippe R, Young P, Cappelleri JC, Brown TM, Ervin C, Hsu M-A, Fallon L. Treatment mode preferences in psoriatic arthritis: a qualitative multi-country study. Patient Prefer Adherence. 2020 Jun 8;2020(14):949-61. doi: 10.2147/PPA.S242336

McIntyre R, Masand P, Patel M, Harrington A, Gillard P, McElroy S, Sullivan K, Montano B, Brown TM, Nelson L, Jain R. Guiding accurate and timely diagnosis of bipolar depression: a novel pragmatic screening tool for identifying patients with bipolar disorder. Poster presented at the 22nd Annual ISBD Virtual Conference 20/20: Vision for Bipolar Disorder and Depression; June 2020. [abstract] Bipolar Disord. 2020 Jun; 22(S1):60. Previously presented at the 2020 ASCP Annual Meeting Virtual Conference Schedule. doi: 10.1111/bdi.12938

Hill NL, Mogle J, Bhargava S, Bell TR, Bhang I, Katz M, Sliwinski MJ. Longitudinal relationships among depressive symptoms and three types of memory self-report in cognitively intact older adults. Int Psychogeriatr. 2020 Jun;32(6):719-32. doi: 10.1017/S104161021900084X

Rockwood NJ. Maximum likelihood estimation of multilevel structural equation models with random slopes for latent covariates. Psychometrika. 2020 Jun;85(2):275-300. doi: 10.1007/s11336-020-09702-9

Stock NM, Hammond V, Hearst D, Owen T, Edwards Z, Ridley M, Rumsey N. Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8+ years. Cleft Palate Craniofac J. 2020 Jun;57(6):746-52. doi: 10.1177/1055665619898596

Bent R, Carson RT, Gnanasakthy A, Kennedy A. Multi-stakeholder perspectives on the patient experience data summary section in new product approvals: current state & future considerations. Presented at the 2020 ISPOR Virtual Conference; May 20, 2020.

Hill NL, Mogle J, Bhargava S, Whitaker E, Bhang I, Capuano AW, Arvanitakis Z, Bennett DA, Barnes LL. Differences in the associations between memory complaints and depressive symptoms among black and white older adults. J Gerontol B Psychol Sci Soc Sci. 2020 May 9;75(4):783-91. doi: 10.1093/geronb/gby091

Ervin C, Joish VN, Castro C, DiBenedetti D, Evans E, Carroll A, Lapuerta P. Elevating the patient voice in type 1 diabetes clinical trials: a comparison of in-depth exit interviews and diabetes-specific questionnaires. Poster presented at the 2020 Endocrine Society Conference (ENDO2020) (Conference cancelled); March 2020. San Francisco, CA. [abstract] J Endocr Soc. 2020 May 8; 4(Suppl 1):MON-630. doi: 10.1210/jendso/bvaa046.1290

DiBenedetti D, Soliman AM, Gupta C, Surrey ES. Patients' perspectives of endometriosis-related fatigue: qualitative interviews. J Patient Rep Outcomes. 2020 May 6;4(1):33. doi: 10.1186/s41687-020-00200-1

VanderPluym JH, Ramirez-Campos V, Cortez A, Cohen J, Gandhi S, Lewis S, Sweeney C, DeMuro C, Lipton R. Patient-reported outcomes to assess symptoms and effects across all 5 phases of migraine. Poster presented at the 2020 ISPOR Conference (Conference cancelled); May 2020. [abstract] Value Health. 2020 May; 23(Supplement 1):S280.

Saretsky T, Finelli L, Phillips M, DeMuro C, Lewis S, Norquist J, Monto A, Martin ET, Osborne RH. Measuring Respiratory Syncytial Virus (RSV) symptom intensity and impact in adults: content validity assessment of a Patient-Reported Outcome (PRO) measure: the RSV Infection Intensity and Impact Questionnaire (RSV-IIIQ). Poster presented at the 2020 ISPOR Virtual Conference; May 2020. [abstract] Value Health. 2020 May 1; 23(Supplement 1):S360. doi: 10.1016/j.jval.2020.04.1380

Gnanasakthy A, Barrett A, D'Alessio D, Norcross L. Review of patient and clinician global assessments in PRO labeling (2017-2019). Poster presented at the ISPOR Virtual 2020 Conference; May 2020. [abstract] Value Health. 2020 May 1; 23(Suppl 1):S299. doi: 10.1016/j.jval.2020.04.094

Whitaker E, Hill NL, Mogle J, Bell T, Bhargava S. Personality moderates the relationship between self-reported memory problems and depressive symptoms in adults aged 70 and older. Poster presented at the Research Day for the Beta Sigma Chapter of the Sigma Theta Tau International Honor Society of Nursing, April 19th, 2020; April 2020. University Park, Pennsylvania. Previously presented at the 2020 Baycrest Rotman Research Institute Conference.

O'Malley L, Druce KL, Chanouzas D, Morgan MD, Jones R, Jayne DRW, Basu N, Harper L. The longitudinal course of fatigue in antineutrophil cytoplasmic antibody-associated vasculitis. J Rheumatol. 2020 Apr;47(4):572-9. doi: 10.3899/jrheum.190113

Rockwood NJ, Hayes AF. Mediation, moderation, and conditional process analysis Regression-based approaches for clinical research. In: Wright Adian GC, Hallquiest MN, editors. The Cambridge handbook of research methods in clinical psychology. Cambridge. Cambridge University Press; 2020. p.396-414. doi: https://doi.org/10.1017/9781316995808.037

Bhargava S, Hill NL, Mogle J, Bell T. Parental history of dementia as a moderator of the association between depressive symptoms and memory complaints. Poster presented at the 2020 Rotman Research Institute Conference; March 16, 2020. Toronto, Canada.

McSweeney L, Breckons M, Fattakhova G, Oluboyede Y, Vale L, Ternent L, Balp M-M, Doward L, Brass CA, Beyer F, Sanyal A, Anstee QM. Health-related quality of life and patient-reported outcome measures in NASH-related cirrhosis. JHEP Rep. 2020 Mar 6;2(3). doi: 10.1016/j.jhepr.2020.100099

Mogle J, Hill NL, Bhargava S, Bell TR, Bhang I. Memory complaints and depressive symptoms over time: a construct-level replication analysis. BMC geriatr. 2020 Mar 2;20(1):57. doi: 10.1186/s12877-020-1451-1

Bratlee-Whitaker E, Hill N, Mogle J, Bell T, Bhargava S. Personality moderates the relationship between self-reported memory problems and depressive symptoms in adults aged 70 and older. Poster presented at the 2020 Baycrest Rotman Research Institute Conference; March 2020. Toronto, Canada.

Bhang I, Hill L, Mogle J, Bratlee-Whitaker E, Bhargava S. Perceived memory decline predicts future depressive symptoms in cognitively intact older adults – results across four large, independent samples. Presented at the Baycrest Rotman Research Institute Conference; March 2020. Toronto, Canada.

Reed SD, McLeod L. Moving beyond the tip of the iceberg to incorporate patients' perspectives and outcomes in the medical device regulatory process. Value Health. 2020 Mar;23(3):298-9. doi: 10.1016/j.jval.2020.01.008

Pariser DM, Simpson EL, Gadkari A, Bieber T, Margolis DJ, Brown M, Nelson L, Mahajan P, Reaney M, Guillemin I, Mallya UG, Eckert L. Evaluating patient-perceived control of atopic dermatitis: design, validation, and scoring of the Atopic Dermatitis Control Tool (ADCT). Curr Med Res Opin. 2020 Mar;36(3):367-76. doi: 10.1080/03007995.2019.1699516