Publications

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Displaying 401 through 450 of 1477 publications.

McBeth J, Mulvey MR, Rashid A, Anderson J, Druce K. The relationship between regional pain with or without neuropathic symptoms and chronic widespread pain. Pain. 2019 Aug;160(8):1817-23. doi: 10.1097/j.pain.0000000000001568

Stover AM, McLeod L, Langer MM, Chen WH, Reeve BB. State of the psychometric methods: patient-reported outcome measure development and refinement using item response theory. J Patient Rep Outcomes. 2019 Jul 30;3(1):50. doi: 10.1186/s41687-019-0130-5.

Harrington M, Hareendran A, Skalicky A, Wilson H, Clark M, Mikl J. Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire. J Patient Rep Outcomes. 2019 Jul 23;3(1):44. doi: 10.1186/s41687-019-0140-3

Vradenburg G, DiBenedetti DB, Hauber B, Slota C, Wronski SL, Comer M, Callahan LF, Winfield J, Rubino I, Krasa HB, Hartry A, Wieberg BA, Kremer IN, Lappin D, Martin AD, Frangiosa T, Biggar V. Findings from the Alzheimer' Disease Patient and Caregiver Engagement (AD PACE) initiative's what matters most qualitative study. Poster presented at the 2019 Alzheimer's Association International Conference (AAIC); July 17, 2019. Los Angeles, CA.

Hill NL, Mogle J, Bhargava S, Bell TR, Wion RK. The influence of personality on memory self-report among black and white older adults. PLoS One. 2019 Jul 15;14(7):e0219712. doi: 10.1371/journal.pone.0219712

Romano (DeMuro) CD, Lewis S, Barrett A, Andersson FL, Williams V, Ancoli-Israel S, Roth T. Development of the Nocturia Sleep Quality Scale: a patient-reported outcome measure of sleep impact related to nocturia. Sleep Med. 2019 Jul;59:101-6. doi: 10.1016/j.sleep.2019.02.006

Rockwood NJ. Estimating cross-classified item response models using the MH-RM algorithm. Presented at the 2019 International Meeting of the Psychometric Society (IMPS); July 2019. New York, NY.

Gold A, Murchland A, Brenowitz W, Glymour MM. Estimating the effects of education of late-life cognition: a meta-analysis of instrumental variables studies based on compulsory schooling laws. Poster presented at the Society for Epidemiological Research 52nd Annual Meeting; June 18, 2019. Minneapolis, MN.

Nussbaumer-Streit B, Greenblatt A, Kaminski-Hartenthaler A, Van Noord MG, Forneris CA, Morgan LC, Gaynes BN, Wipplinger J, Lux LJ, Winkler D, Gartlehner G. Melatonin and agomelatine for preventing seasonal affective disorder. Cochrane Database Syst Rev. 2019 Jun 17;6(6):CD011271. doi: 10.1002/14651858.CD011271.pub3

Chapman L, Richardson S, McLeod L, Rimm E, Cohen J. Pilot evaluation of aggregate plate waste as a measure of students' school lunch consumption. Presented at the 2019 Annual Meeting of the American Society for Nutrition; June 9, 2019. Baltimore, MD. [abstract] Curr Dev Nutr. 2019 Jun 13; 3(Suppl 1):1391-2.

Kolotkin RL, Williams VSL, Ervin CM, Williams N, Meincke HH, Qin S, von Huth Smith L, Fehnel SE. Validation of a new measure of quality of life in obesity trials: impact of weight on quality of life-lite clinical trials version. Clin Obes. 2019 Jun;9(3):e12310. doi: 10.1111/cob.12310

Whibley D, AlKandari N, Kristensen K, Barnish M, Rzewuska M, Druce KL, Tang NKY. Sleep and pain: a systematic review of studies of mediation. Clin JPain. 2019 Jun;35(6):544-58. doi: 10.1097/AJP.0000000000000697

Steward T, Mestre-Bach G, Granero R, Sanchez I, Riesco N, Vintro-Alcaraz C, Sauchelli S, Jimenez-Murcia S, Aguera Z, Fernandez-Garcia JC, Garrido-Sanchez L, Tinahones FJ, Casanueva FF, Banos RM, Botella C, Crujeiras AB, Torre R, Fernandez-Real JM, Fruhbeck G, Ortega FJ, Rodriguez A, Menchon JM, Fernandez-Aranda F. Reduced plasma orexin-A concentrations are associated with cognitive deficits in anorexia nervosa. Sci Rep. 2019 May 27;9(1):7910. doi: 10.1038/s41598-019-44450-6

Forneris CA, Nussbaumer-Streit B, Morgan LC, Greenblatt A, Van Noord MG, Gaynes BN, Wipplinger J, Lux LJ, Winkler D, Gartlehner G. Psychological therapies for preventing seasonal affective disorder. Cochrane Database Syst Rev. 2019 May 24;5(5):CD011270. doi: 10.1002/14651858.CD011270.pub3

Gemzoe K, Crawford R, Caress A, Rushton R, Shah A, Collier S, Doward L, Vekaria R, Worsley S, Leather DA. Patient and healthcare professional (HCP; general practitioner [GP] and practice manager [PM]) insights to facilitate engagement in future effectiveness studies: learnings from the Salford Lung Studies (SLS). Poster presented at the 2019 American Thoracic Society (ATS) International Conference; May 22, 2019. Dallas, TX.

Qin S, Ma J, Nelson L. Two approaches to evaluate missing clinical outcome assessment responses - a simulation study. Poster presented at the 2019 ISPOR 24th Annual International Meeting; May 22, 2019. New Orleans, LA.

DiBenedetti D, McLeod L, Williams N, Coles T, Tzivelekis S, Meckley LM. Development and validation of the IG Patient Experience with Treatment (IGPET), a novel patient-reported measure for individuals with primary immunodeficiency diseases. Poster presented at the 2019 ISPOR 24th Annual International Meeting; May 21, 2019. New Orleans, LA.

Gabriel A, Apostolides J, Nickodem A, Rad AN, Patel V, Zaw R, Martin S, Harris N, Jones G, Nahabedian MY. Patient experience with different implant breast reconstruction surgeries. Poster presented at the 2019 ISPOR 24th Annual International Meeting; May 20, 2019. New Orleans, LA.

DiBenedetti D, Harris N, Rozjabek H, Fastenau J. Evaluating the content validity of the PROMIS® physical function short forms in overweight and obese individuals. Poster presented at the 2019 ISPOR 24th Annual International Meeting; May 20, 2019. New Orleans, LA.

Whalley D, Svedsater H, Doward L, Crawford R, Leather D, Lay-Flurrie J, Bosanquet N. Follow-up interviews from The Salford Lung Study (COPD) and analyses per treatment and exacerbations. NPJ Prim Care Respir Med. 2019 May 9;29(1):20. doi: 10.1038/s41533-019-0123-0

Carrillo N, Huizing M, Leoyklang P, Quintana M, Shrader J, Bradley K, Slota C, Perreault J, Class B, Ciccone C, Parks R, Joe G, Heiss J, Berry S, Malicdan MC, Gahl W. Open-label phase 2 clinical trial of ManNAc for GNE myopathy. Poster presented at the American Academy of Neurology 71st Annual Meeting; May 6, 2019. Philadelphia, PA.

Lewis EF, Coles TM, Lewis S, Nelson LM, Barrett A, DeMuro Romano C, Stull DE, Turner SJ, Chang CG. Development, psychometric evaluation, and initial feasibility assessment of a symptom tracker for use by patients with heart failure (HFaST). J Patient Rep Outcomes. 2019 May 2;3(1):26. doi: 10.1186/s41687-019-0113-6

Whitaker E, Hill N, Mogle J, Bhang I, Bhargava S. Memory self-report in women: the impact of neuroticism on responses to two assessment items. Poster presented at the College of Medicine Research Symposium; May 2019. University Park, PA.

Lukowski SL, DiTrapani J, Rockwood NJ, Jeon M, Thompson LA, Petrill SA. Etiological distinction across dimensions of math anxiety. Behav Genet. 2019 May;49(3):310-6. doi: 10.1007/s10519-018-09946-3

Smith EP, Witherspoon DP, Bhargava S, Bermudez JM. Cultural values and behavior among African American and European American children. J Child Fam Stud. 2019 May 1;28:1236-49.

Oser TK, Minnehan KA, Wong G, Parascando J, McGinley (Miller) E, Radico J, Oser SM. Using social media to broaden understanding of the barriers and facilitators to exercise in adults with type 1 diabetes. J Diabetes Sci Technol. 2019 May;13(3):457-65. doi: 10.1177/1932296819835787

Druce KL, Dixon WG, McBeth J. Maximizing engagement in mobile health studies: lessons learned and future directions. Rheum Dis Clin North Am. 2019 May;45(2):159-72. doi: 10.1016/j.rdc.2019.01.004

Harrington M, Whalley D, Twiss J, Rushton R, Martin S, Huynh L, Yang H. Insights into the natural history of metachromatic leukodystrophy from interviews with caregivers. Orphanet J Rare Dis. 2019 Apr 29;14(1):89. doi: 10.1186/s13023-019-1060-2

Crawford R, Doward L, Conroy R, Saretsky T, Sinha A. Living with congenital cytomegalovirus: a conceptual model of impact for patients and caregivers. Poster presented at the 2019 Pediatric Academic Societies (PAS) Meeting; April 28, 2019. Baltimore, MD.

Clebak K, Oser T, McGinley (Miller) E, Berg A, Dong H. If you build it: the effects of the establishment of a procedure clinic within a family medicine residency practice site. Presented at the 2019 Society of Teachers of Family Medicine (STFM) Annual Spring Conference; April 26, 2019. Toronto, Canada.

Quintana M, Shrader J, Slota C, Joe G, McKew JC, Fitzgerald M, Gahl WA, Berry S, Carrillo N. Bayesian model of disease progression in GNE myopathy. Stat Med. 2019 Apr 15;38(8):1459-74. doi: 10.1002/sim.8050

Oser SM, Stuckey HL, Parascando JA, McGinley (Miller) EL, Berg A, Oser TK. Glycated hemoglobin differences among blog-reading adults with type 1 diabetes compared with those who do not read blogs: cross-sectional study. JMIR. 2019 Apr 2;4(2):e13634. doi: 10.2196/13634

Qin S, Nelson L, McLeod L, Eremenco S, Coons SJ. Assessing test-retest reliability of patient-reported outcome measures using intraclass correlation coefficients: recommendations for selecting and documenting the analytical formula. Qual Life Res. 2019 Apr;28(4):1029-33. doi: 10.1007/s11136-018-2076-0

DiBenedetti D, Harris N, Rozjabek HM, Fastenau J. Assessing factors influencing eating in overweight and obese individuals. Poster presented at the Endocrine Society’s 101st (ENDO) Annual Meeting and Expo; March 23, 2019. New Orleans, LA.

Gartlehner G, Nussbaumer-Streit B, Gaynes BN, Forneris CA, Morgan LC, Greenblatt A, Wipplinger J, Lux LJ, Van Noord MG, Winkler D. Second-generation antidepressants for preventing seasonal affective disorder in adults. Cochrane Database Syst Rev. 2019 Mar 18;3(3):CD011268. doi: 10.1002/14651858.CD011268.pub3

Nussbaumer-Streit B, Forneris CA, Morgan LC, Van Noord MG, Gaynes BN, Greenblatt A, Wipplinger J, Lux LJ, Winkler D, Gartlehner G. Light therapy for preventing seasonal affective disorder. Cochrane Database Syst Rev. 2019 Mar 18;3(3):CD011269. doi: 10.1002/14651858.CD011269.pub3

Bernstein C, Kosa KM. Framing messages to motivate consumers: example for thermometer use. Presented at the 2019 Consumer Food Safety Education Conference; March 7, 2019. Orlando, FL.

Williams V, Stull D, Houghton K, Williams N, Teynor M. Minimal clinically important differences of the expanded hammersmith functional motor scale in later-onset spinal muscular atrophy: results from the Phase 3 CHERISH trial. Poster presented at the 2019 AMCP Managed Care & Specialty Pharmacy Annual Meeting; March 25, 2019. San Diego, CA. [abstract] J Manag Care Spec Pharm. 2019 Mar; 25(3-a Suppl):S54.

DiBenedetti D, Tzivelekis S, Meckley L. Humanistic cost impacts associated with immunoglobulin replacement therapy among patients with primary immunodeficiency disease in the United States. Poster presented at the 2019 AMCP Managed Care & Specialty Pharmacy Annual Meeting; March 25, 2019. San Diego, CA. [abstract] J Manag Care Pharm. 2019 Mar; 25(3-a Suppl):S37.

Bhang I, Mogle J, Hill N, Whitaker E, Bhargava S. Examining the temporal associations between subjective memory impairment and depressive symptoms in older adults. Poster presented at the 2019 Rotman Research Institute Conference; March 2019. Toronto, ON, Canada. doi: 10.1093/geroni/igy023.2879

Rockwood NJ, Jeon M. Estimating complex measurement and growth models using the R package PLmixed. Multivar Behav Res. 2019 Mar;54(2):288-306. doi: 10.1080/00273171.2018.1516541

Thomas E, Bernstein C, Blitstein JL, Kosa KM. Characteristics of consumer-focused public health campaigns: a systematic review. Poster presented at the Consumer Food Safety Education Conference (CFSEC); March 2019. Orlando, FL.

Nag A, Olayinka-Amao B, Martin S, Purser M, Mladsi D. The humanistic burden of chronic idiopathic constipation in the US: a systematic review. Poster presented at the 2019 AMCP Managed Care & Specialty Pharmacy Annual Meeting; March 25, 2019. San Diego, CA. [abstract] J Manag Care Pharm. 2019 Mar; 25(3-a Suppl):S17.

Kosa KM, Cates S, Brophy JE, Godwin S, Chambers D, Chambers E. Using survey data to distinguish handling practices of raw poultry between older adults and parents to develop targeted messages. Poster presented at the 2019 Consumer Food Safety Education Conference; March 2019. Orlando, FL.

Fehnel S, Fiedorek FT, Nelson L, DiBenedetti D, Spence S, Carson RT. Development and psychometric evaluation of the Diabetic Gastroparesis Symptom Severity Diary. Clin Exp Gastroenterol. 2019 Feb 22;12:93-103. doi: 10.2147/CEG.S184016

Meckley L, Coles T, Williams N, DiBenedetti D, McLeod L. Experience with immunoglobulin treatment among patients with PIDD in the US. Poster presented at the American Academy of Allergy, Asthma & Immunology Annual Meeting; February 22, 2019. San Francisco, CA. [abstract] J Allergy Clin Immunol. 2019 Feb; 143(2 Supplement):AB112. doi: 10.1016/j.jaci.2018.12.341

Gnanasakthy A, Barrett A, Evans E, D'Alessio D, Romano (DeMuro) C. A review of patient-reported outcomes labeling for oncology drugs approved by the FDA and the EMA (2012-2016). Value Health. 2019 Feb;22(2):203-9. doi: 10.1016/j.jval.2018.09.2842

Kreher N, Phillips D, Fehnel S, Brown M. Evaluating the content validity of the Diary of Irritable Bowel Syndrome Symptoms – Mixed (DIBSS-M) to assess gastrointestinal symptoms associated with Fabry disease. Poster presented at the 16th Annual WORLDSymposium; February 11, 2019. Orlando, FL. [abstract] Mol Genet Metab. 2019 Feb; 126(2):S87. doi: 10.1016/j.ymgme.2018.12.215

Kosa KM, Cates SC, Brophy J, Godwin S, Chambers D, Chambers E. Older adults and parents of young children have different handling practices for raw poultry. J Food Prot. 2019 Feb;82(2):200-6. doi: 10.4315/0362-028X.JFP-18-323

Coles T, Chen K, Nelson L, Harris N, Vera-Llonch M, Krasner A, Martin S. Psychometric evaluation of the hypoparathyroidism symptom diary. Patient Relat Outcome Meas. 2019 Jan 29;2019(10):25-36. doi: 10.2147/PROM.S179310